As we go forward with our efforts to raise awareness and funds through the sales of the Live Inspired application, we’ll be sharing news items and stories that relate to Duchenne Muscular Dystrophy and how much of an impact the disease has on the family. To me, these stories more than many others, relate the sense of urgency behind raising funds to dedicate research towards finding a cure.
This story from King5 news in Seattle has some really touching quotes from Aidan’s family and also gives some direction on how to donate further. Aidan’s uncle set up a screening of “Darius Goes West” and from that, $17 of every $20 DVD sold goes directly to Charley’s Fund. Here is a quote from Mindy Leffler, Aidan’s mother, which I pulled from the King5 story.
“People want to heal and get better and move on,” said Leffler “But with Duchenne, you’re not allowed to because it’s every single day, and it’s a 20-year, 25-year-long tragedy.”
Here’s another quote from Mindly Leffler from the story.
“[Aidan has] probably a 5-year window where we’ll have an opportunity to take advantage of these therapies,” said Leffler. “After a certain point, his muscles will be in such bad shape that he can’t take advantage of what’s going on.”
These families and their children need help. Purchasing the Live Inspired app is a great way to contribute to their cause and also to help yourself on a daily basis. How many blog posts and quotes and inspiring stories do we need to hear before we commit to making a difference? Please help in any way that you can.