I was directed to this YouTube video after hearing a story about it. This documentary was produced by Mark Curcio, Stuart Lasky and Phil Cantore while they were seniors at DePaul University. It tells the story of Phil’s last year of life prior to his passing at the age of 21. Mark and Stuart were interviewed by ABC 7 in Chicago about the project and what they have learned from it thus far. Phil’s parents were also interviewed for the story.
This is just one more example of why funding research is so vital. Phil wasn’t able to benefit from the latest DMD research, but there are thousands of others who can. It’s up to us to help. Here’s a quote from his mother. The video is embedded below.
“He graduated with honors, and I’m proud to say that he was two semesters short, and he did walk. In fact, his father and I went up on stage and I was crying.”